Friend of Rare Disease Day 2011
H.E.A.R.D. Support Group - hemangioendothelioma
Description of the activity: I have 150 active members on my registry and new enquiries weekly. i will notify my members, via the website, about Rare Disease Day a d encourage them to speak up about this rare vascular cancer.
Contact person: Cynthia Pollak
Website: www.HEARDsupport.org
Description of organiser: Other Patient Organisation
Country:
|
Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |