Sdružení Tarlovova cysta
Description of the activity: Zapolit a vyhledat nejvíce lidí se vzácným onemocněním a pomáhat jim v podpoře nemoci tak i popř kam se mají odkázat a kde najít informace o své nemoci.
Contact person: Dana Černá
Description of organiser: EURORDIS member
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |
Rare Disease Day Partners: