All Friends of Rare Disease Day

Friend of Rare Disease Day 2011

NAPSer

Description of the activity: We will organise several public appearances, tribunes and on the 28th - public campaign in 3 biggest cities with goal of raising public awareness of rare diseases.

Contact person: Bojan Davinic - Secretary General

Website: www.napser.org

Description of organiser: Health professional

Country:

Who are "Friends of Rare Disease Day?

Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaign

Become a Friend of Rare Disease Day