Friend of Rare Disease Day 2011
Slovak Myeloma Society - Patients Club
Description of the activity: The aim of is to increase the quality of the patients’ life. To help the patients not to feel they are alone with their problems. To work together with family members and their relatives.
Contact person: Miroslav Hrianka
Website: www.myelom.sk
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |