Friend of Rare Disease Day 2011
Syringomyelia Foundation
Description of the activity: We are posting your logo on the main page of our website. We are also putting out a mailing to all of our website users who are registered on our community website, http://www.LivingWithSM.org to inform them of the event and to share a link to the Rare Disease Day website.
Contact person: Christopher S. Burton
Website: www.SyringomyeliaFoundation.org
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |