Friend of Rare Disease Day 2011
Associazione Italiana per l'Eteroplasia Ossea Progressiva Onlus
Description of the activity: Segnalare sul website l'avvenimento, sensibilizzando l'opinione pubblica a donare per le associazioni per le malattie rare
Contact person: Dott. Roberto Bufo
Website: www.ipohaonlus.org
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |