Friend of Rare Disease Day 2011
European Waldenström Macroglobulinemia Network
Description of the activity: raise the awareness of the special challenges for rare disease patients
Contact person: Marlies Oom
Website: www.ewmnetwork.eu and www.waldenstrom.eu
Description of organiser: EURORDIS member
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |