Friend of Rare Disease Day 2011
Philippine Society for Orphan Disorders Inc.
Description of the activity: Family Forum cum Press Conference with photo opp (hopefully) with President Gloria Macapagal-Aroyo, Extra-ordinary Measures screening on March 10, Signature Campaigns,to name a few.
Contact person: Cynthia K. Magdaraog
Website: www.psod.org.ph
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |