Friend of Rare Disease Day 2011
Dystrophic Epidermolysis Bullosa Research Association (DEBRA) Canada
Description of the activity: I will work in coordination with DEBRA Canada, CORD, NORD, and DEBRA International to serve as the North American ambassador on behalf of Epidermolysis Bullosa organizations, to promote this worthy objective!
Contact person: Gena Brumitt Gruschovnik, Director of Awareness & Education
Website: www.debracanada.org
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |