Friend of Rare Disease Day 2011
ECD Global Alliance
Description of the activity: We are working with NORD in the US to obtain Rare Disease Day proclamations from state governors (with good success!). Our members are being encourged to submit Rare Disease Day articles to their local and regional newspapers and TV stations. We have posted the Rare Disease Day logo on our website. We have asked hospitals to include articles about Rare Disease Day in their newsletters.
Contact person: Kathy Brewer
Website: www.erdheim-chester.org
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |