Friend of Rare Disease Day 2011
The Angelman Network
Description of the activity: The Angelman Network will have a picnic and invite people from other organisations to particpate This will be in Christchurch New Zealand.
Contact person: Darren Humphries
Website: http://www.angelmannetwork.com
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |