Friend of Rare Disease Day 2011
Fundación FOP
Description of the activity: We’ll send emails to Senators to highlight the importance of their definitive approval of the bill approved by the Representative’s Chamber, then Argentina will have a National Law on Rare Diseases.
Contact person: Moira Liljesthröm
Website: www.fundacionfop.org.ar
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |