Friend of Rare Disease Day 2011
Stichting Diagnose kanker / Rondom kanker
Description of the activity: Asking special attention for rare genetic syndromes following by cancer, like the Li-Fraumeni syndrome See also www.li-fraumeni.nl
Contact person: Tom van der wal
Website: www.diagnose-kanker.nl
Description of organiser: Other Patient Organisation
Country:
|
Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |