Friend of Rare Disease Day 2011
Vasculitis Foundation Western New York Chapter
Description of the activity: Promote education regarding the family of vasculitis diseases and specifically for Churg-Strauss Syndrome.
Contact person: Janice Cifelli
Website: www.vasculitisfoundation.org
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |