Friend of Rare Disease Day 2011
ASOCIACION MARFAN ARGENTINA
Description of the activity: red de comunicacion que es una enfermedad rara
Contact person: DRA MONICA SEGURA
Website: www.marfan.org.ar
Description of organiser: Health professional
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |