Friend of Rare Disease Day 2011
SED Argentina
Description of the activity: Estamos trabajando para aumentar la conciencia sobre las enfermedades raras desde nuestro website y mediante el contacto con las autoridades de salud y los medios de comunicación.
Contact person: Alejandra Guasp
Website: http://sedargentina.community.officelive.com/
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |