Friend of Rare Disease Day 2011
Foundation for Angelman Syndrome Therapeutics
Description of the activity: We are proud to support Rare Disease Day & will promote the day through our website, Facebook & Twitter sites, encouraging our supporters to be part of local events.
Contact person: Meagan Cross
Website: www.cureangelman.org
Description of organiser: Other Patient Organisation
Country:
|
Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |