Friend of Rare Disease Day 2011
CDG Family Network
Description of the activity: We will be presenting information to forge collaberation and partnerships with rare disorder patient and parent groups to the medical and science community at The Sanford-Burnham Institute in LaJolla, CA. February 26, 2010.
Contact person: Cynthia Wren Gray
Website: www.cdgs.com
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |