Friend of Rare Disease Day 2011
Ataxia UK
Description of the activity: Promoting the day to members and supporters and encouraging them to engage with writing to MPs and the parliamentary receptions that are going on.
Contact person: Claire McGowan
Website: www.ataxia.org.uk
Description of organiser: Other Patient Organisation
Country:
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Who are "Friends of Rare Disease Day? Individuals, Patients, Patient Organisations, health professionals, researchers, drug developers, public health authorities and everyone having an interest in rare diseases are invited to join this year's campaignBecome a Friend of Rare Disease Day |