Become a friend of Rare Disease Day 2013
Patient Organisations, health professionals, researchers, drug developers and public health authorities part of an organisation and having an interest in rare diseases are invited to join this year's campaign. Individual patients and families are encouraged to follow us on Twitter, visit our Facebook page and Tell your story on our website by sharing your pictures and videos.
When you send us your completed form, we will add your name and email address to a Friends of Rare Disease Day list which will be displayed on the website.
Friends of Rare Disease Day’ are being asked to:
- Post the Rare Disease Day logo on their websites and in their publications.
- Link their website to www.rarediseaseday.org
- Try to encourage media coverage of Rare Disease Day by suggesting stories to their media contacts for that day or the week leading up to it.
- Try to organise an awareness-raising activity on or around that date
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