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There are now 196 Friends of Rare Disease Day

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Participation type: Patient / Contact Person: Colleen Armstrong

Aeth.me

Participation type: Patient / Contact Person: Mathieu LARUELLE

ass. sclerosi tuberosa onlus italia

Participation type: Patient / Contact Person: magni manuela

Ataxia South Wales

Participation type: Patient / Contact Person: Alan Thomas

Bad Glue Blog

Participation type: Patient / Contact Person: Jilly Dybka

BENMOULAI Mohammed Reda

Participation type: Patient / Contact Person: BENMOULAI Mohammed Reda

Brian Christensen (Individual)

Participation type: Patient / Contact Person: Brian Christensen

Carla Bento

Participation type: Patient / Contact Person: Carla Bento

Cystinosis Organization Mexico

Participation type: Patient / Contact Person: Victor Gomez

Elizabeth Morell

Participation type: Patient / Contact Person: Elizabeth Morell

Eurordis

Participation type: Patient / Contact Person: Badea Valentina

HAILEY HAILEY DISEASE

Participation type: Patient / Contact Person: UNIAMO

Hunter's Quest to Cure Charcot-Marie-Tooth Disease

Participation type: Patient / Contact Person: JoAnn Haase

Individual!

Participation type: Patient / Contact Person: Katie

Mark Dvorak

Participation type: Patient / Contact Person: Mark Dvorak

MS Association Finland

Participation type: Patient / Contact Person: Joni Lenruth

NBIA Patient

Participation type: Patient / Contact Person: Pia Jenk

Proyecto Pide un Deseo México, iap

Participation type: Patient / Contact Person: David Peña

Rainbow over the wall

Participation type: Patient / Contact Person: fiona robson

Sarcoidosis and Lyme Disease Support Australia

Participation type: Patient / Contact Person: Sue Sherratt

SIMBA italian Behcet association

Participation type: Patient / Contact Person: ouarda Fareh

tarlovove cysty

Participation type: Patient / Contact Person: anna čizova okr.Sabinov SR