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There are now 196 Friends of Rare Disease Day

Aegerion Pharmaceuticals

Participation type: Industry / Contact Person: David Caponera

Allsup

Participation type: Industry / Contact Person: Tai Venuti

Alnylam

Participation type: Industry / Contact Person: Maryellen Livingston

Biomarker Profiles

Participation type: Industry / Contact Person: Leticia Cano

CSL Behring

Participation type: Industry / Contact Person: Christopher Forentz

Mark Krueger & Associates, Inc.

Participation type: Industry / Contact Person: Mark Krueger, MPH

Minoryx Therapeutics S.L.

Participation type: Industry / Contact Person: Marc Martinell

NephroPlus

Participation type: Industry / Contact Person: Kamal D Shah

Nutricia North America

Participation type: Industry / Contact Person: Jennifer Earley

Orphan Europe

Participation type: Industry / Contact Person: Samantha Parker

PCUT BioPartners

Participation type: Industry / Contact Person: Jess Rabourn

PSR: the Orphan Experts

Participation type: Industry / Contact Person: Roger Legtenberg

REGENX Biosciences, LLC

Participation type: Industry / Contact Person: James Brown