There are now 252 Friends of Rare Disease Day
ARS VIVEDNDI -The Polish PKU & RD Assotiation
Participation type: EURORDIS member / Contact Person: Stan Maćkowiak
Marcia dei Malati Rari
Participation type: EURORDIS member / Contact Person: Simona Pantalone Ielmini / Carmen Cardone
MIR Movimento Italiano Malati Rari
Participation type: EURORDIS member / Contact Person: Simona Pantalone Ielmini/Carmen Cardone
PHA EUROPE, EUROPEAN PULMONARY HYPERTENSION ASSOCIATION
Participation type: EURORDIS member / Contact Person: Pisana Ferrari
Save Babies Through Screening Foundation UK
Participation type: EURORDIS member / Contact Person: Pat Roberts
UNIAMO - Federazione Italiana Malattie Rare Onlus
Participation type: EURORDIS member / Contact Person: Renza Barbon Galluppi
