Rare Disease Day 2010

February 28

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There are now 189 Friends of Rare Disease Day 2010

EURORDIS Members Other Patient Groups Industry Patients Public Authorities Caregivers Health Professionals Researchers Others

ACHSE e.V.

Participation type: EURORDIS member / Contact Person: Rania von der Ropp

ANGELI NOONAN Italian Association for the Noonan Syndrome - non profit org.

Participation type: EURORDIS member / Contact Person: Angelo Petroni

Associació Catalana de Malalties Neuromusculars

Participation type: EURORDIS member / Contact Person: Maria Ramos

Association Française du Syndrome d'Ondine

Participation type: EURORDIS member / Contact Person: Webmaster

Associazione Italiana Favismo - G6PD Deficit

Participation type: EURORDIS member / Contact Person: Michela Calderaro

Debra Belgium

Participation type: EURORDIS member / Contact Person: Ingrid Jageneau

DEBRA Italia Onlus

Participation type: EURORDIS member / Contact Person: Serena Belloni

DHAG

Participation type: EURORDIS member / Contact Person: marliese ratzlaff

European Waldenström Macroglobulinemia Network

Participation type: EURORDIS member / Contact Person: Marlies Oom

Europen Myeloma Platform

Participation type: EURORDIS member / Contact Person: Lia van Ginneken

Genetic Interest Group

Participation type: EURORDIS member / Contact Person: Melissa Hillier

HYPOPHOSPHATASIE EUROPE

Participation type: EURORDIS member / Contact Person: Steve URSPRUNG

International Brain Tumour Alliance (IBTA)

Participation type: EURORDIS member / Contact Person: Kathy Oliver (Co-Director)

MSS Research Foundation

Participation type: EURORDIS member / Contact Person: Henk-Willem Laan

Niemann-Pick Disease Group (UK)

Participation type: EURORDIS member / Contact Person: Toni Mathieson

Prader-Willis syndrome Association in Sweden

Participation type: EURORDIS member / Contact Person: Cecilia Bjärgö

Radiorg.be

Participation type: EURORDIS member / Contact Person: Lut De Baere

Rare Disease Association Caladrius

Participation type: EURORDIS member / Contact Person: Elina Kalnina

Rare Disease UK

Participation type: EURORDIS member / Contact Person: Stephen Nutt

Sdružení Tarlovova cysta

Participation type: EURORDIS member / Contact Person: Dana Černá

shwachman diamond support

Participation type: EURORDIS member / Contact Person: Mrs Tracy Horsfield

The Cavan Tommy Hoey Trust (Ireland)

Participation type: EURORDIS member / Contact Person: Terry Hoey

Tom Wahlig Foundation

Participation type: EURORDIS member / Contact Person: Christine Meier

Rare Disease Day Partners:
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