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Contact person:
Karen Keeley
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Event in United States
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Rare Disease Day Virtual
Join us for our 2nd
01 Feb 2017 - 28 Feb 2017
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Every Body Counts! Cam
The Myotonic Dystrophy
01 Feb 2017 - 28 Feb 2017 San Francisco
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Rare Disease Awareness
I am hosting a toy,
01 Feb 2017 - 28 Feb 2017 Lordsburg
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Awareness KEY for Klippel-Feil
Our organization, Klippel-Feil
01 Feb 2017 - 04 Mar 2017 Globally
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Klippel-Feil Syndrome
Join us, as we advocate
01 Feb 2017 - 03 Mar 2017 Globally in your...
One day one rare disease
I'm trying to write
04 Feb 2017 - 28 Feb 2017
Gynecologic Cancer Social
Most gynecologic cancers
08 Feb 2017 Twitter
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Rare DoGooders
Come for the largest
11 Feb 2017 Irving, Dallas,...
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Twitter Chat: #PatientDriven
Join us to discuss
15 Feb 2017 Boston, MA
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Rare Disease Day 2017
RARE DISEASE DAY 2017
17 Feb 2017 Atlanta, GA
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Rare Disease Awareness
Our organization, Kids
21 Feb 2017 Downingtown
7th Annual Sanford Rare
The Sanford Children’s
24 Feb 2017 Sioux Falls, SD
Eighth Annual SBP Rare
Since its inception
24 Feb 2017 La Jolla, Calif...
Rare Acts of Kindness
In honor of Rare Disease
24 Feb 2017 - 28 Feb 2017
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Tour de Ettes
Tour de Ettes is a
24 Feb 2017 - 01 Mar 2017 World-wide Web
Great Plains Rare Disease
Saturday, February
25 Feb 2017 Sioux Falls, SD
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Annual Walk Against Rare
~~We need to educate
25 Feb 2017 Hialeah Gardens
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Rare Disease Day
Join us to visit with
25 Feb 2017 Houston
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Vegas Cares About Rare
The inaugural Vegas
25 Feb 2017 Las Vegas
Golf Classic | Rare Disease
In recognition of Rare
25 Feb 2017 San Diego
Rare Disease Day Golf Tournament
In recognition of Rare
25 Feb 2017 San Diego, CA
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#VirtualHug for #RareD
This Tuesday, February
26 Feb 2017 - 01 Mar 2017 Columbia
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Spinal CSF Leak Awareness
Spinal CSF Leak Awareness
26 Feb 2017 - 04 Mar 2017
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Hike to Cure CDG
Please join us on
26 Feb 2017 Los Angeles, Gl...
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Sarcoidosis Awareness Month
Sarcoidosis Awareness
27 Feb 2017 Washington DC
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Rare Disease Week on Capitol
Rare Disease Week on
27 Feb 2017 - 02 Mar 2017 Washington
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Rare Disease Day Advocacy
Please join patients,
27 Feb 2017 Minnesota
HOSA/Nemours Rare Disease
Delaware HOSA-Future
28 Feb 2017 Wilmington, DE
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Rare Disease Day at Ru
Rutgers University
28 Feb 2017 Piscataway
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Rare Diseases Day
I will have a table
28 Feb 2017 Cumberland
3rd Annual Nemours Rare
Nemours Alfred I. duPont
28 Feb 2017 Wilmington DE
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Rare Disease Day 2017:
Join MassBio, The MGH
28 Feb 2017 Boston
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The Rose F. Kennedy IDDRC's
The RFK-IDDRC will
28 Feb 2017 New York, NY
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Taco Tuesday for Rare
Our event is very simple.
28 Feb 2017 Scottsdale
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Carcinoid & Neuroendocrine
The Arizona Carcinoid
28 Feb 2017 Gilbert, Phoenix,...
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1 Annual Kentucky Rare
Registration for event
28 Feb 2017 Kentucky
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Share Your Rare on Rare
Share your rare! One
28 Feb 2017 Corvallis
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UCSF Rare Disease Symposium:
Negotiating the Challenges
03 Mar 2017 San Francisco,...
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Hike to Cure CDG
Dear Friends and Family,  Please
05 Mar 2017 Glendale
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2nd Annual PMP/Appendiceal
PMP/ Appendendiceal
08 Apr 2017 Philadelphia
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2nd Annual Congenital Disorders
On May 9 and 10, 2017
09 May 2017 - 10 May 2017 New Orleans
PURA Syndrome Foundation
PURA Syndrome Foundation
24 Jun 2017 - 25 Jun 2017 Philadelphia
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Disorder: The Rare Disease
Disorder: The Rare
03 Oct 2017 Boston
United States

Agility Clinical

Revolutionizing Rare Disease Research with Whole Genome Sequencing. Agility clinical presents world class geneticist Dr. Stephen President/CEO Rady Children’s Institute for Genomic Medicine. Benefiting The One in a Billion Foundation, the first child saved by DNA sequencing.

Agility Clinical cordially invites you to join us for our 4th Rare Disease Day event taking place in San Diego on February 2, 2017 from 2:30pm to 7:00pm. Our goal is to increase awareness for rare disease research and raise funds for the One in a Billion Foundation, supporting patient advocacy for Macrophage Activation Syndrome Diseases, including XIAP and NLRC4. Speakers Stephen Kingsmore, MD, DSc President / CEO, Rady Children's Institute for Genomic Medicine, San Diego "A Vision for Precision Medicine at Rady Children's Hospital" Amylynne Volker and Nicholas Volker Founder of One in a Billion Foundation and mother of Nic Volker "The First Child Saved by DNA Sequencing" Marlene Haffner, MD, MPH CEO of Haffner Associates Former Director, FDA Office of Orphan Products Development "21st Cures - What's in it for Rare Diseases and Orphan Drugs" Jacqueline Blem Sr. Director Project Management, Agility Clinical "Taking the Patient-Centric Approach to Clinical Research in Orphan Disease"

Revolutionizing Rare Disease Research with Whole Genome Sequencing. Agility clinical presents world class geneticist Dr. Stephen President/CEO Rady Children’s Institute for Genomic Medicine. Benefiting The One in a Billion Foundation, the first child saved by DNA sequencing.


http://agilityrarediseasefund.org

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