Event

28 Feb 2017
When:
Tue 28 February, 2017
Location
Cambridge Judge Business School, Trumpington St. Cambridge. ,CB2
Cambridge
Uk
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United Kingdom

Cambridge Lecture and Networking Event 28 February 2017 Cambridge Judge Business School, Trumpington St. Cambridge. ,CB2, Cambridge, Uk
Hosted by Cambridge Rare Disease Network and NIHR Rare Diseases Translational Research Collaboration Cambridge

Rare Disease Day Cambridge Lecture
Tues 28 February 2017 from 6pm to 9pm
at Cambridge Judge Business School

Jointly hosted by

NIHR Rare Diseases Translational Research Collaboration 
Cambridge Rare Disease Network

Highlights Rare Disease Day and Rare Disease Research 

Are you interested in Rare Disease research? 

If the answer is yes then this evening lecture and networking opportunity will be of interest to you.

It will Include:

Updates about rare disease research
Hearing from speakers directly affected by rare disease
An opportunity to talk with researchers and professionals 
To connect with other patients and carers
Drinks and nibbles after the speakers

With representatives from Rare Disease Community, Patients, charities and researchers the evening offers fantastic opportunities for networking and information sharing.

About Rare Disease Day

2017 marks the 10th year that the internationally rare disease community will celebrate Rare Disease Day.

On 28 February 2017, people living with or affected by a rare disease, patient organisations, politicians, carers, medical professionals, researchers and industry will come together in solidarity to raise awareness of rare disease

speakers include:-

Professor Patrick Chinnery

Co-Chair for NIHR Rare Diseases Translational Research Collaboration. Clinical Neurologist & Wellcome Trust Senior Fellow

Karen Harrison

Endocrine Project Manager for ALD LIFE. Karen is a carrier of ALD and parent to two affected sons, one who died aged 8.

Professor Stephen Jackson

Cambridge University Professor of Biology. Head of Cancer Research UK Laboratories at Gurdon Institute

Dr Nick Sireau

CEO of AKU Society, has two sons affected by Black Bone Disease. Chairman of Findacure & member of Eurordis board of Directors

 

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