Event

22 Feb 2017
When:
Wed 22 February, 2017
To :
Tue 28 February, 2017
Location

Philippines
2016 events in Philippines
In line with the passage
22 Feb 2017 Metro Manila
Presidential Proclamation
22 Feb 2017 - 28 Feb 2017
Visit our photo exhibit
22 Feb 2017 Metro Manila
Philippines

8th National Rare Disease Awareness Week Campaign 22 February 2017 - 28 February 2017 , Philippines
Hosted by Philippine Society for Orphan Disorder, Inc. (PSOD)

Presidential Proclamation 1989 declared the last week of February as the “National Rare Disease Week” in the Philippines on February 8, 2010. Since then, PSOD has taken the initiative to be the central coordinating organization for the rare disease awareness week initiatives in the country—bringing together different healthcare institutions, local government units, government agencies, civic and volunteer organizations, media, and other private and public institutions to be united in creating awareness and support for Filipinos with rare diseases

This year, we will be celebrating the 8th National Rare Disease Week on 22-28 February 2017—joining hands with the rest of the world in the Rare Disease Day 2017 (Feb 28) campaign with the theme “With Research Possibilities are Limitless”.

Through our collective voice, we can advocate for:

Research on a specific disease or across diseases
Funding for research on rare disease

Private-public collaboration on research for rare disease
Patient participation in research

Organizations are invited to participate in the nationwide campaign through any of the following:

Social Media (High 5!) Campaign

Like the National Rare Disease Week (NRDW) Page on Facebook

Support the NDRW Thunderclap

Customize your profile photo with a Twibbon

Upload your Raise your hands for Rare Photos

Use #CareForRarePH (official hashtag) in your posts and status updates

Other Public Awareness Campaign

Post about NRDW on your website

Display banners and posters in highly visible and high-traffic areas

Disseminate info about the campaign to your network

Make blue denim ribbons  out of your old denims  and wear it during the campaign week

For inquiries, please contact: Karen Panol at [email protected], +632 661 8935 or +63925 826 2044.

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