flag of United States

Rare Disease Dayin United States

The USA joined Rare Disease Day in 2009 with participation from NORD, the National Organization for Rare Disorders, making the campaign a truly international affair. Diverse events and campaigns have been organised since then, including a collection of photographs with the Rare Disease logo across the USA, “Handprints across America”, and educational programmes in schools. In 2013 President Barack Obama sent a letter proclaiming his support of the day.

NORD, the National Organization for Rare Disorders, is committed to the identification, treatment, and cure of rare diseases through programmes of education, advocacy, research and patient services.  They can be contacted directly to help you find a patient organisation locally which may have more information about a specific rare disease or disorder. Find their contact information on the bottom of this page. 

Below you will find more information about what is happening in 2014 for Rare Disease Day along with contact information of the organisations holding the event. You can also get involved! Let us know if you know of any events that are not listed here. Write to us at rarediseaseday@eurordis.org.

Events in United States

National Alliance representing United States

logo of the organisation

NORD, the National Organization for Rare Disorders, joined Rare Disease Day in 2009 as the official US sponsor of the day. In 2013, President Barack Obama sent a letter proclaiming his support of the day.

NORD provides a press-kit, hosts a gallery of photographs with the rare disease logo across the USA, “Handprints across America”, provides educational materials to bring Rare Disease Day into schools, and hosts state house events across the country.  Learn about these and other ways that you can get involved at rarediseaseday.us.

NORD is committed to the identification, treatment, and cure of rare diseases through programs of education, advocacy, research and patient services. Learn more at rarediseases.org. 

Below you will find more information about what is happening in 2014 for Rare Disease Day along with contact information for the organizations holding the event.