Rare Disease Day in Slovakia
Slovakian patient organisations have collaborated on Rare Disease Day since 2013. They have used the occasion to host conferences for all stakeholders, publish scientific papers, and hold events in the Slovak parliament. In 2016, an annual special issue of the European Pharmaceutical Journal was released about the Slovak experience and approach towards rare diseases.
The Slovak Alliance of Rare Diseases (Slovak RD Alliance) is the network of patient organisations in Slovakia which supports all people affected by rare diseases. They were founded in 2012 and can be contacted directly to help you find a patient organisation locally which may have more information about a specific rare disease or disorder. Find their contact information on the bottom of this page.
Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].