Rare Disease Day in Slovenia
Slovenia began participating in Rare Disease Day in 2010. Events have saught to bring together families, researchers and policy makers to celebrate the day and bring about change. The President of the Republic of Slovenia was the honorary patron of both the 2014 and 2015 events, raising the profile of rare diseases among the general public. 2015 saw the country's first national conference on rare diseases.
Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].