Rare Disease Day in Poland
Poland's Rare Disease Day celebrations began in 2009, and since then, there have been many conferences and photo exhibitions. The First Lady of Poland offered her patronage to the day in 2013 and personally participated in key events. In 2015, celebrations in Warsaw included a conference and a musical performance by an opera singer who struggles with a rare disease.
The Polish National Forum on the Treatment of Orphan Diseases (ORPHAN) has been active since 2005. They act as an umbrella patient organisation, representing and advocating for a group of rare-disease patient organisations in Poland. They can be contacted directly to help you find a patient organisation locally which may have more information about a specific rare disease or disorder. Find their contact information on the bottom of this page.
Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].