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Panama

Rare Disease Day in Panama

Patient associations in Panama joined Rare Disease Day in 2011 and have since used the occasion to mobilise the general public in marches, and to push for greater legislation for rare disease patients and orphan drugs. 2014 events included teaching in universities and hospitals about rare diseases, treatments and the needs of patients.

Associations participating in Rare Disease Day 2014 from Panama included the Fundacion Ninos de Cristal (OI), funicrispa@hotmail.com, and the Clinical Science Associate Panama, desiree.donado@genzyme.com. Please do get in contact with either organisation if you have any questions or would like to get involved.

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