Latvia

National Alliance
Latvian Alliance for Rare Diseases
Latvian Alliance for Rare Diseases
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Latvia

Rare Disease Day in Latvia

Latvia has been involved in Rare Disease Day since 2010. Most notably, patients groups have held discussions in the EU Conference Hall in Riga to discuss Latvian policy for rare diseases. Other events have included photo exhibitions to raise awareness about the struggles rare disease patients face. In 2016, Latvian Alliance for Rare Diseases wrote an Open Letter to mass media and general public of Latvia about the crucial and problematic situation in the field of the rare diseases in Latvia. The Open letter underlined important issues such as the lack of  the National Plan for Rare Diseases for  2016-2020.

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].

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