Rare Disease Day in Japan
Japanese associations joined Rare Disease Day in 2010. The Rare Disease Day Japan secretariat office is located inside NPO ASrid where Japan Patients Association and NANBYO Paediatric Network are members. Each Rare Disease Day event is organised by a stakeholder (regional Patient Groups, Individual Patient Groups, Universities, etc.) and local organisers hold a range of different types of events such as seminars, conferences and fun events. In 2016, Rare Disease Day was celebrated in more than 25 cities.
Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].