Rare Disease Day in India
In India, patient organisations first became involved in Rare Disease Day in 2010. Since then, they've focused on raisig awareness and compassion for people living with rare disease through poster campaigns, school visits, competitions, counseling sessions, and more. In 2012, the day attracted mass media attention when Indian star singer Shaan performed at an event. In 2016, events were held in Delhi, Bangalore, Jaipur, Guntur, Chennai, and Chennai. Highlights included workshops on rare disease genetics, an essay contest and seminars on changing government policy on rare disease with support from various government and NGO offcials.
Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].