Rare Disease Day in Croatia ?
Croatia's first Rare Disease Day celebrtion was in 2009, where patient representatives paid a visit to the President. Since then, support has continued to grow each year, and the event is now backed by the First Lady of Croatia and is used to mobilise policy makers and the general public.
In 2016, the Croatian National Alliance for Rare Disease in collaboration with others attempted to break the Guinness World Record for the largest online photo album of hugs. Zagreb also saw a conference that focused on cross-border co-operation and physical therapy among other topics
The Croatian National Alliance for Rare Diseases has been active since 2002, and brings together over 300 individual members living with a rare disease, along with some 17 patient organisations, and encompassing more than 400 rare disorders. Find their contact information at the bottom of this page. The Croatian Help Line for Rare Diseases was launched by the National Alliance in coordination with Rare Disease Day in 2011 to provide information and extra help and support to patients and their family members. It can be reached on +385 8009966.
You can also get involved! Do you know of any events not listed here? Email us at firstname.lastname@example.org.