Rare Disease Day in Hong Kong ?
Hong Kong first celebrated Rare Disease Day in 2010. Since then, the day has been used as a platform for many awareness-raising activities, including campaigns visiting hospitals to educate both medical students and doctors about rare diseases and the release of a book about children living with a rare disease. In 2015, the annual rare disease round table brought together for the first time patient organizations and medical experts, as well as guests from mainland China, South Korea and Taiwan. As there is currently no rare disease policy in Hong Kong, it is hoped that events such as this one will encourage and motivate the governernment to make some changes.
Do you know of any events not listed here? Or would you like to get involved? Email us at email@example.com.
Associations participating in Rare Disease Day 2016 from Hong-Kong include the Joshua Hellmann Foundation for Orphan Disease, firstname.lastname@example.org. Please do get in contact with them if you have any questions.