Rare Disease Dayin Finland
Patient organisations in Finland have taken part in Rare Disease Day since its launch in 2008.
2014's events across Finland included lectures, cookery event and information points, and were all sponsored by The Finnish Network for Rare Diseases. The key event was a conference held in Helsinki to share the latest information on the National Plan for Rare Diseases. The lead speaker was chairman of the National Plan steering committee and Ministerial Counsellor Jaakko Yrjö-Koskinen from Ministry of Social Affairs and Health.
The Finnish Alliance for Rare Diseases (HARSO) represents 22 member organisations.Their contact details are listed below.
You can also get involved! Let us know if you know of any events that are not listed here. Write to us at firstname.lastname@example.org.