Welcome to Rare Disease Day 2013 in Finland / Tervetuloa Harvinaisten Sairauksien Päivään 2013 !
The Finnish Network for Rare Diseases wishes everyone a nice Rare Disease Day!
Last year we had a powerful RDD. The main event was held at the premises of the Finnish Parliament. Our message is clear: the voice of people with RD should be seen in the preparation of the national plan for rare diseases.
This year we are carrying on this message. In spring we will publish a book containing messages of people with RDD to the policy-makers and professionals.
At the RDD 28.2. we have invited people to local cinema in Helsinki to hear our new plans and to have a nice evening at the movies.
At the RDD we are also informing health care professionals in hospitals about our objectives and people with RD.
We are also friends of HARSO - national alliance for RD in Finland.
Let's stay in contact!
Harvinaiset-verkosto - Finnish Network for Rare Diseases
The Finnish Network for Rare Diseases consists of 17 independent, non-governmental organisations and foundations who work for rare disease patients’ intere...