National Alliance
Rare Diseases Denmark (SJAELDNE DIAGNOSER)
Rare Diseases Denmark (SJAELDNE DIAGNOSER)
2017 events in Denmark

Rare Disease Day in Denmark

Organisations in Denmark have participated in Rare Disease Day since 2008, with a big scale celebration in 2008, 2012 and 2016.

For Rare Disease Day 2016, the Danish Alliance Rare Diseases Denmark arranged a Rare Race and a Rare March in the biggest cities in Denmark. Also, the Rare Prize was given to two persons for their excellent contriburtion to the rare disease community in Denmark. Moreover, a rare exhibition was presented outside the Danish Parliament on Rare Disease Day.

For Rare Disease Day 2017, an event is organised in Aarhus, the second largest city in Denmark, for more information, go to: Rare Diseases Denmark update our Facebook page on a daily basis one month before Rare Disease Day, for more information, go to:

The Danish National Alliance, Rare Diseases Denmark, was founded in 1985 and now represents 49 national patient organisations. Rare Diseases Denmark can be contacted directly to help you find a patient organisation which may have more information about a specific rare disease or disorder. Find their contact information at the bottom of this page.

You can also get involved! Do you know of any events not listed here? Email us at

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