Rare Disease Day in Czech Republic
Patient organisations from the Czech Republic have collaborated in organising Rare Disease Day activities since 2010, hosting educational seminars, creating videos to communicate the work of the National Alliance, and securing media attention via radio broadcastings on rare diseases.
In Prague in 2016 there was a round table event at the House of Deputies in the Czech Parliament. This event intended to recap the ongoing terms of the Czech National Action Plan for rare diseases.
The Czech Alliance for Rare Diseases, ČAVO, was founded in March 2012 and currently has 30 members. They represent both individual members as well as patient organisations, with the mission to improve the quality of life of rare disease patients. They can be contacted directly to help you find a patient organisation locally which may have more information about a specific rare disease or disorder. Find their contact information at the bottom of this page.
You can also get involved! Do you know of any events not listed here? Email us at [email protected].