CHINA

> View more events in Asia/Middle East

Other languages: CN

Rare Disease Day China

57bd448d98a72bfb79f2282e5ac7a4a5 China-Dolls Center for Rare Disorders became the Rare Disease Day Partner since 2009,dedicated to popularising the concept of rare disease, and get policy maker, public authorities, researchers, medical professionals, industry representatives, students, and the public involved in rare disease issue.

In the 2011 Rare Disease Day Campaign, China-Dolls launched advocacy program and events on national television, public media, and the internet, and sent petition to the National People's Congress on rare disease legislation and social security.

2012 events:
TIME                  EVENTS
23 Jan~29 Jan   Rare Disease Day China Homepage Website
1 Feb~29 Feb   Photograph Gallery on SNS and promotion activities
15 Feb~15 Mar   Rare Disease Day Advertisement
29 Feb   Policy and Legislation Conference on Rare Disease
25 Feb~5 Mar   Activities based on communities and campuses around the country
3 Mar~5 Mar   NPC and CPPCC political proposal
1 Feb~15 Mar   Media advocacy programs

Supporter: Hemophilia Home of China, China MPS Care Center, China Albinism Society, TSC Together, PAH China, PKU Union, Niemann-Pick Care Center, Hemophilia Association of Tianjin, DMD China, LAM China, China Ataxia Association, Rett Family Care Center, etc.

Cooperation Media: Sina, Weibo.com, Sanlian Magazine, Songshuhui.net, Jinghua Post, Baidu, Touch Media

Support Media: CCTV, BTV, and other 30 medias

Contact us:
Lane Shaw 
Coordinator of China Rare Disease Network
Tel:+86 10 6345 8713(802)
Email:xiaolei@chinadolls.org.cn

View all events in CHINA

Feb  1 - 2012
Rare Disease Day China 2012 Homepage

Read more

Feb  1 - 2012
Photograph Gallery on SNS and promotion activities

Read more

Feb  1 - 2012
Media advocacy

Read more

Feb  15 - 2012
Rare Disease Day Advertisement

Read more

Feb  25 - 2012
Activities based on communities and campuses around th...

Read more