CHINA
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China-Dolls Center for Rare Disorders became the Rare Disease Day Partner since 2009,dedicated to popularising the concept of rare disease, and get policy maker, public authorities, researchers, medical professionals, industry representatives, students, and the public involved in rare disease issue.
In the 2011 Rare Disease Day Campaign, China-Dolls launched advocacy program and events on national television, public media, and the internet, and sent petition to the National People's Congress on rare disease legislation and social security.
2012 events:
TIME EVENTS
23 Jan~29 Jan Rare Disease Day China Homepage Website
1 Feb~29 Feb Photograph Gallery on SNS and promotion activities
15 Feb~15 Mar Rare Disease Day Advertisement
29 Feb Policy and Legislation Conference on Rare Disease
25 Feb~5 Mar Activities based on communities and campuses around the country
3 Mar~5 Mar NPC and CPPCC political proposal
1 Feb~15 Mar Media advocacy programs
Supporter: Hemophilia Home of China, China MPS Care Center, China Albinism Society, TSC Together, PAH China, PKU Union, Niemann-Pick Care Center, Hemophilia Association of Tianjin, DMD China, LAM China, China Ataxia Association, Rett Family Care Center, etc.
Cooperation Media: Sina, Weibo.com, Sanlian Magazine, Songshuhui.net, Jinghua Post, Baidu, Touch Media
Support Media: CCTV, BTV, and other 30 medias
Contact us:
Lane Shaw
Coordinator of China Rare Disease Network
Tel:+86 10 6345 8713(802)
Email:xiaolei@chinadolls.org.cn
View all events in CHINA
Other languages: CN
Rare Disease Day China
In the 2011 Rare Disease Day Campaign, China-Dolls launched advocacy program and events on national television, public media, and the internet, and sent petition to the National People's Congress on rare disease legislation and social security.
2012 events:
TIME EVENTS
23 Jan~29 Jan Rare Disease Day China Homepage Website
1 Feb~29 Feb Photograph Gallery on SNS and promotion activities
15 Feb~15 Mar Rare Disease Day Advertisement
29 Feb Policy and Legislation Conference on Rare Disease
25 Feb~5 Mar Activities based on communities and campuses around the country
3 Mar~5 Mar NPC and CPPCC political proposal
1 Feb~15 Mar Media advocacy programs
Supporter: Hemophilia Home of China, China MPS Care Center, China Albinism Society, TSC Together, PAH China, PKU Union, Niemann-Pick Care Center, Hemophilia Association of Tianjin, DMD China, LAM China, China Ataxia Association, Rett Family Care Center, etc.
Cooperation Media: Sina, Weibo.com, Sanlian Magazine, Songshuhui.net, Jinghua Post, Baidu, Touch Media
Support Media: CCTV, BTV, and other 30 medias
Contact us:
Lane Shaw
Coordinator of China Rare Disease Network
Tel:+86 10 6345 8713(802)
Email:xiaolei@chinadolls.org.cn
View all events in CHINA
Feb
1 -
2012
Rare Disease Day China 2012 Homepage
Feb
1 -
2012
Photograph Gallery on SNS and promotion activities
Feb
1 -
2012
Media advocacy
Feb
15 -
2012
Rare Disease Day Advertisement
Feb
25 -
2012
Activities based on communities and campuses around th...
