Chile

2017 events in Chile
Chile

Rare Disease Day in Chile

One highlight of the rare disease campaign in Chile, which began in 2012, was the empowerment programme for children with rare diseases, in which the children drew self-portraits that were later used to reach out to policy makers for better rare disease legislation.

In 2016, 15 organisations got together in Vina del Mar and set up stands with music and balloons to promote the cause of rare diseases in Chile. Amigos Del Tourette Chile similarly set up stands outside the Presidential Palace in Santiago.

You can also get involved! Do you know of any events not listed here? Email us at rarediseaseday@eurordis.org.

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