Rare Disease Day in Switzerland
Swiss patient organisations have shown support for Rare Disease Day since 2010. Conferences have helped the Swiss Ministry of Health with its work on a National Strategy for Rare Diseases. In 2016, a conference and networking session allowed patients and medical professionals to interact. Also a Black Nose day was held to give people living with a rare disease increased visibility and a voice in Switzerland.
The Swiss multilingual alliance, ProRaris was created in 2010. They can be contacted directly to help you find a patient organisation locally which may have more information about a specific rare disease or disorder. Find their contact information on the bottom of this page.
Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].