Rare Disease Day in Canada ?
Patient organisations in Canada have engaged in Rare Disease Day since its first year in 2008, arranging gala dinners and exchanges between researchers and patients, as well as regional events across Canada.
Highlights in 2016 included an event in Ontario where people blew over 7000 bubbles to represent the total number of rare diseases. In Ajax, there was also a rare disease Expo, which offered potential solutions to create inclusive, accessible communities.
The Canadian National Alliance, the Canadian Organization for Rare Disorders (CORD), serves as the voice for the estimated 1 in 12 Canadians affected by a rare disease. They can be contacted directly to help you find a patient organisation locally which may have more information about a specific rare disease or disorder. Find their contact information on the bottom of this page.
You can also get involved! Do you know of any events not listed here? Email us at firstname.lastname@example.org.