Rare Disease Day in Austria
Austria began celebrating Rare Disease Day in 2009. Every year since, there has been the annual Rare Disease March, followed by rare disease information booths at the finish line to inform and educate the general public. In 2016, Salzburg held an event that brought together support groups, patients and families to raise awareness outside of the rare disease community of the impacts they can have.
Pro Rare Austria was founded in 2011 as an umbrella organisation for those living with a rare disease in Austria. They can be contacted directly to help you find a patient organisation locally which may have more information about a specific rare disease or disorder. Find their contact information at the bottom of this page.
Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected]