Organisation

NATIONAL ORGANIZATION FOR RARE DISORDERS (NORD)
City :
Phone :
Contact
Event organised
United States

NATIONAL ORGANIZATION FOR RARE DISORDERS (NORD) City: Phone :

NORD, the National Organization for Rare Disorders, joined Rare Disease Day in 2009 as the official US sponsor of the day. In 2013, President Barack Obama sent a letter proclaiming his support of the day.

NORD provides a press-kit, hosts a gallery of photographs with the rare disease logo across the USA, “Handprints across America”, provides educational materials to bring Rare Disease Day into schools, and hosts state house events across the country.  Learn about these and other ways that you can get involved at rarediseaseday.us.

NORD is committed to the identification, treatment, and cure of rare diseases through programs of education, advocacy, research and patient services.

 


http://www.rarediseaseday.us
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