Rare Diseases Denmark (SJAELDNE DIAGNOSER) City: Phone : +4533140010
Rare Diseases Denmark is a national alliance of 52 rare disease societies. We also host NURD - Network for Ultra Rare Diseases. Rare Diseases Denmark’s work is based on volunteers and a minor professional secretariat.
Organisations in Denmark have participated in Rare Disease Day since 2008, with a big scale celebration in 2008, 2012 and 2016.
For Rare Disease Day 2016, the Danish Alliance Rare Diseases Denmark arranged a Rare Race and a Rare March in the biggest cities in Denmark. Also, the Rare Prize was given to two persons for their excellent contriburtion to the rare disease community in Denmark. Moreover, a rare exhibition was presented outside the Danish Parliament on Rare Disease Day.
For Rare Disease Day 2017, an event was organised in Aarhus, the second largest city in Denmark, for more information, go to: https://www.facebook.com/events/1221950581174785/. Rare Diseases Denmark updated our Facebook page on a daily basis one month before Rare Disease Day, for more information, go to: https://www.facebook.com/sjaeldnedag/?fref=ts
Plans for 2018 has not yet been put in place.