EU video introducing Rare Disease

Cette vidéo en français

Dieses Video in deutscher Sprache

EURORDIS Fact Sheets

What is a Rare Disease?

Rare Diseases: Understanding this Public Health Priority
English
French
German
Spanish
Italian

Orphanet

Orphanet Report Series

OECD Observer "Rare Diseases a Hidden Priority"

English
French

Breakthrough legislation in favour of rare diseases:

EU Council Recommendations on Rare Diseases
EU Regulation on Orphan Products
US Orphan Drug Act