Rare Disease Day 2010

February 28

Rare Disease Day 2009 Highlights

RARE DISEASE DAY HIGHLIGHTS 2009

 

RARE DISEASE DAY IN FACTS & FIGURES

Read ALL THE HIGHLIGHTS > (PDF)

Number of organisers at national level : 19 National Alliances
… representing over 600 patient groups in Europe.

Number of participating countries: 30

Website visits: 21 000

Public participation
in "Tell your story" about rare disease:
Videos – 40     Photos – 100

Facebook Group
 created for Rare Disease Day 2009:
2,128 people signed up

Map of the world showing Rare Disease Day events 2009
Climbers at summit of Aconcagua display the rare disease day t-shirt

MEDIA COVERAGE

More than 1500 media hits, including:
over 1200 on-line press clippings
300 paper press clippings

EVENTS

including
  •  Lobbying for rare diseases at the European & national levels
  •  Raising awareness amongst the general public
  •  Information and educational events

           The most original event!

A mountain climber displayed the Rare Disease Day 2009 t-shirt at the summit of the Aconcagua -- the highest peak in South America!
child having a flower painted on her cheek People displaying the Rare Disease Day poster Rare Disease day stands
Read ALL THE HIGHLIGHTS > (PDF)

 

 

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