Get involved

Rare Disease Day is open to everyone!
Individuals, patients, patient organisations, health professionals, researchers, drug developers, public health authorities - the more people involved the better!
As you’ll find out, there are many ways to participate. Let’s join our efforts to give hope to rare disease patients all over the world!

6 ways to participate in Rare Disease Day 2014

Become a Friend1. Become a Friend!

Are you part of an organisation that has in interest in rare diseases? Become a friend of Rare Disease Day to show your support and to join our 2014 campaign!
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Join your hands2. Raise and Join your hands!

Raise and Join your hands to show your Solidarity with rare disease patients around the world!
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Tell your story3. Tell your Story!

Tell your rare disease story by uploading a photo and/or video to our website.
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Rare Disease Day4. Download our communications material!

Download the Rare Disease Day logo, Information Pack, and other communication material!
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Rare Disease Day5. Join us on our Social Media!

Facebook, Twitter, YouTube, Flickr… participate in the Rare Disease Day campaign via Social Media!
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Organise an awareness-raising activity6. Organise an awareness-raising activity

Public marches, informative lectures, meeting with local and national authorities… Since Rare Disease Day started in 2008 thousands of varied and exciting events have been organised to raise awareness for Rare Diseases.
Find out more about how to organise an awareness-raising activity near you!