Rare Disease Day is open to everyone.

1. Contact your National Alliance

If your country does not have one or you are an international organisation, you can still get involved by contacting EURORDIS at rarediseaseday@eurordis.org.

2. Download the Rare Disease Day logo and poster

We ask only that this logo be displayed in the spirit in which it was intended—as a non-commercial symbol of global partnership in the search for ways to improve the lives of those affected by rare diseases.

3. Other ways to get involved

·    Enter the Photo Contest or the Video Contest

·    Add a photo onto the Photo Wall

·    Join the Rare Disease Day 2010 Facebook Group

·    Become a Friend of Rare Disease Day·    

·    Send us stories of successful collaboration between rare disease patients and researchers to rarediseaseday@eurordis.org

·    Organise debates on topics of importance to rare disease patients with Play Decide tools.

The more participants, the more impact for the Day, and the more we’ll be able to do for patients.

Thank you for joining in!

Ideas for supporting the campaign

·    Coordinate letter writing or email campaign to local or national policy and decision makers
·    Send a press release to the media
·    Organise interviews with the media
·    Organise fund-raising events
·    Organise events around rare diseases and the topics at heart of patients
·    Approach a special/VIP to be the patron of the day
·    Give awards to people who have acted for the cause of rare disease patients
·    Hold a competition centred on rare diseases
·    Set up a help line to respond to enquiries
·    Display posters, images or other awareness raising displays
·    Distribute stickers and flyers
·    Make appointments to meet with your local & national authorities
·    Organise a visit of an MEP/ health minister to a research lab working on a rare disease