About Rare Disease Day

Find out what Rare Disease Day is about

29 February 2016 marks the ninth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from countries and regions all over the world will hold awareness-raising activities based on the slogan Join us in making the voice of rare diseases heard.

Rare Disease DayWhat is Rare Disease Day?

Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases.
Read more

Rare DiseaseWhat is a Rare Disease?

A rare disease, also referred to as an orphan disease, is any disorder that affects a small percentage of the population. Although the disease may be rare, patients and families share a common struggle.
Read more

Living with a Rare Disease, Day-by-day, Hand in handTheme for 2016

This year the theme is Patient Voice - Join us in making the voice of rare diseases heard
Read more

Rare Disease DayOverview of Past Rare Disease Days

See year-by-year highlights and how Rare Disease Day has grown since its first celebration in 2008!
Read more

Share this